Wednesday, May 5, 2021

Resources for Kidney Patients and their Coaches Seeking Donors

 Resources for Kidney Patients Seeking Donors

 Compiled from other sources for educational purposes by NKDO.org 

 (no copyright claimed)



 


 

 

1

 

Kidney Transplant Centers

a Searchable List

https://www.kidneytransplantcenters.org

 

Compare perforance, services and donor protections of U.S. kidney transplant centers.

 

Those factors could have a bearing on a potential donor’s decision whether to volunteer to undergo surgery at a particular transplant center.

 

 

 

Find transplant centers based on location, NKR membership, Donor Shield Protections, Standard Voucher Program participation, Outcomes, and more.  A must for kidney patients and potential donors.

 

2

 

Transplant Centers

Multilisting and Waiting Times

https://www.txmultilisting.com/

 

Compare U.S. transplant centers and wait times.

 

 

 

3

 

NKR

National Kidney Registry

https://kidneyregistry.org/

 

2021 1st Quarter Report

https://www.kidneyregistry.org/wp-content/uploads/2021/06/nkr-report-2021-Q1.pdf 

 

Better transplant outcomes and

comprehensive donor protections through the NKR

 

With more than 4,800 transplants facilitated at approximately 100 participating transplant centers, the NKR helps non-matching donor-recipient pairs to find matches from within the largest group of living donors in the U.S. and works to remove barriers to transplantation by affording donors protections not otherwise available.

 

 



 

4

 

National Kidney Registry’s

YouTube Channel 

https://www.youtube.com/channel/UCBZBdP9_JUWcOq-GYqzmHlQ

 

Short videos on the Standard Voucher Program, Donor Shield, Donor Support and Protections, Donor-Recipient Matching, the NKR’s Failsafe Software and more.

 

 





 

5

 

NKDO

National Kidney Donation Organization

https://www.nkdo.org/

 

Increasing living kidney donation through education and awareness programs.

 

 



 

 

6

 

National Kidney Donation Organization’s

YouTube Channel

https://www.youtube.com/channel/UCsoS-yavRQCVl7bwcjT2iCA

 

Educational videos about aspects of kidney donation – an excellent collection of informative, easy to digest information.

 




 

 

7

 

Having Your Donor Find You

https://havingyourdonorfindyou.org/nkdo/

 

Harvey Mysel’s videos to teach kidney patients and their advocates how to create a campaign to have your donor find you.

 

 



 

 

8

 

Finding and Securing Kidney Transplant Living Donors

Amzn.to/3tiCUqN

 

Practical advice on using social media and other methods to find living kidney donors. ($6 on Amazon)

 

 

 

 

9

 

NKF

National Kidney Foundation

https://www.kidney.org/

 

NKF sponsors scientific research and innovation.  NKF enhances lives through action, education and accelerating change.

 

 



 

 

 

10

 

AKF

American Kidney Fund

https://www.kidneyfund.org/

 

The American Kidney Fund fights kidney disease on all fronts with programs of prevention, early detection, financial support, disease management, clinical research, innovation and advocacy.

 

 



 

 

11

 

SRTR

Scientific Registry of Transplant Recipients

https://www.srtr.org/

 

National and transplant center-specific information re organ transplantation outcomes.

 

Provides advanced statistical and epidemiological analyses related to solid organ allocation and transplantation in support of the Department of Health and Human Services and its agents in their oversight of the national organ transplantation system.

 

 



 

12

 

UNOS

United Network for Organ Sharing

https://unos.org/

 

The organization administering the OPTN.

 




 

13

 

OPTN

The Organ Procurement and Transplantation Network

https://optn.transplant.hrsa.gov/

 

The unified transplant network established by the U.S. Congress under the National Organ Transplant Act (NOTA) of 1984.

 

             



 

 

I am in Need of a Kidney:

(https://www.nkr.org/kfl-recipient)

Sample Custom Websites:
 

Religious Views on Organ Donation (courtesy of Midwest Transplantation Network):

https://mwtn.org/religious-views-on-donation/

Community and Faith Leader's Resource Guide (courtesy of Midwest Transplantation Network)

https://mwtn.org/wp-content/uploads/2020/11/V2-FLG_final-1.pdf

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